Riley has returned home from Children’s Hospital of Orange County!  The little big man is now sleeping in his own bed!!!!!  He still has to go to the doctor nearly daily but he’s chillin’ with his big sis and hanging with the parental units 24/7!!!
 
The last numbers were:  His white blood count up to 10K […]

We are all becoming tired of the grind. Mom is with Riley everyday while Daddy is working and caring for Sydney.  Meanwhile the grandmas are both working full time and still putting in much of their off time with Riley.  Papa too, is becoming a bit fatigued by the long hours and the even longer […]

Riley is still hoping to come home soon.  Just when we think he’s ready to head out the door…his numbers don’t add up and he has to settle in for a little longer.   CHOC’s has extremely high standards and we know they have Riley’s health as priority one.  CHOC’s Rocks! Word is…Riley is now 100% Sydney.  […]

Last week was a switch-up week for Team Riley.  Mom continues to stay with Riley on most nights and some of the days, with Gramma Kathy relieving Mom a couple of nights a week and helping to make sure that Sydney gets where she needs to go.  Dad gets to come in and spend the […]

The week in review:
 
Monday – Riley is still on TPN (meals in a drip bag).  He isn’t eating yet and that is somewhat of a concern…
 
Riley may or may not have surgery today.  He is due to have surgery on Wednesday but if a slot opens up today…he’s going over to St Josephs for a […]

Riley has all but kicked his RSV! He still has a cough but he hasn’t been gasping for breath for several days now. It was so hard to see the little big-man sucking hard only to get short, little breaths…but now he’s up and playing for hours at a time!!!
Riley had surgery this […]

Riley turned one yesterday! So far being one is very busy. Riley had to work with the speech pathologist, the occupational therapist, the physical therapist, the repository therapists and take a bath…all in the same day! He was a busy little trooper indeed!
Riley has been showing good signs of accepting his transplant […]

It has been a long hard week.  But as we begin another week…we are happy to report that Riley is still a stud and Mom is as tough as her son.
Amy is and has been at the hospital constantly since Tuesday night.  She has had a good night sleep and is at her son’s side […]

Hello and welcome to Team Riley!  My name is Papa and I am one of the grandfathers of Riley and Sydney.  At Team Riley we invite you all to post your comments here and know that we appreciate your warm wishes and kind words.  The members here at Team Riley believe in prayer.  So feel […]

The holiday season is upon us and we are thankful, grateful, and thrilled to have Team Riley together to celebrate this most joyous occasion.  The little-big man is taking in all the sights, sounds, and smells of the season.  Meanwhile, our hero the X factor, is beginning to realize the Christmas season is a splendor […]